Well, I have bought a little more time before a diagnosis. My MRI results came in and they "showed no significant changes" which means "treatment will remain the same" for now. This is wonderful news (mostly).
It is promising because if this were MS or something similar then the doctors would expect to see changes on the MRI tests. I have had about seven MRI tests over the last 13 months and none have shown scary changes. However, they are all showing the same "significant damage" that was seen in the first CT Scan and MRI tests. It is encouraging that the damage is not spreading and causing more problems.
There is a teeny tiny part of me that is ready for a true diagnosis though. I am taking a lot of pills every day and we are just hoping that they are working... hoping that they are preventing something worse. And so we continue to pray... and hope.